Friday, July 22, 2016

We are hopeful in the near future for relief from Laurel's many treatments and surgeries.  Our family and Laurel have felt the weight of what it is like to live with a chronic medical condition.  About two years ago we knew it was time to move forward to this phase.  I am including a link with helpful coping tips but have also summarized them below.  http://www.med.umich.edu/yourchild/topics/chronic.htm

The article talks about chronic health conditions.  They define them as health problems that last over three months and affect normal activities... and they may require extensive medical care. These people are more likely to experience frequent doctor visits and some of the treatments may be scary or painful. Often families change daily routines to help the child.



http://theactionsociety.com/wp-content/uploads/sites/287/FP-Medical-Tourism3-260x140.png

Helpful coping tips are explained
* Parents should stay involved and share appropriate information according to their child's developmental stage concerning treatment.
* Learn as much as you can about the condition and contact your doctor with concerns.  Keep a list of questions that come up so you can ask them.  This is how you obtain the best care.
* The child should have choices; some treatments are necessary and others are open for discussion.
* It is important to stay hopeful and flexible about the condition.
* Support the child's friendships and activities with peers and caring adults they can trust.
* Teach coping skills such as communication and organization.
* Enjoy fun activities, some of the normal routines of life and listen to your child.
* Parents and the family also need to take care of themselves. Let your support network know what you need and spend time with them.
  • Make time to laugh!   I added this one.  We were out window shopping and feeling down from time to time, when found these masks.  Putting them on really made me laugh.  She picked her's first.