February is National Ectodermal Dysplasia Awareness Month

Involving the parents in their child's treatment helps the children to get the best treatment. There are variations of  Ectodermal Dysplasia from child to child and several health care professionals involved in their care.  Many providers or parents give up or get discouraged about making health better for these children because it is too difficult and expensive.

There are challenges in the journey, such as more appointments than can be counted and trying to coordinate them.  The number increases during their high school senior year and when they want to go away to college or serve a mission.  There is no doubt it is difficult to obtain the high cost medical coverage and sufficient dental coverage.  For the parents, lifelines are great communication, trust and recommendations of doctors/specialists so we can make important treatment decisions for our children.

Parents like it when the health care team joins us in the happiness we find in the journey.  Our greatest gift is to have doctors thoughtfully treat our children.  Laurel has been greatly blessed by many!  We look for the goodness.    

Joe Tucker

Dr. Giannini