Welcome!  We want you to know the National Foundation For Ectodermal Dysplasias has been a wonderful resource for us in understanding Ectodermal Dysplasias. They have helpful information if you are looking to identify a syndrome, to connect with other families affected by these dysplasias or for help in understanding how to work with medical insurance (see related links).  Through this blog we hope to assist the foundation by reaching out to the public in our area so effected children have a diagnosis, and so healthcare professionals have the knowledge they need to help people with ectodermal dysplasias.  We would love to hear your comments or questions! Thanks